Life Before NDIS

Before the introduction of NDIS, Service Providers such as MDEIP have been receiving NSW Government block funding from ADHC to provide EI services to children from 0>8 yoa who have been assessed with developmental delay including a diagnosed syndrome and/or complex medical condition
Families/carers have needed to pay for any additional EI services that their child may require even if the child has a Medicare plan when there is a gap to be paid by the child’s parents/carers.

The types of funding available were:

FaHCSIA Funding > HCWA
•    FaHCSIA = Department of Families, Housing, Community Services & Indigenous Affairs
•    2008 > Helping Children with Autism (HCWA) Funding
•    Children diagnosed with an asd before 6 yoa
•    $6 000 x 2 = $12 000 > 7th birthday or funds expended
•    HCWA funding for SP + OT + Therapist-approved resources to assist with the cost of EI services + Behavioural Psychologist
FaHCSIA Funding > BSI
•    January 2009 > Better Start for Children with Disability Initiative (BSI) Funding
•    Children diagnosed before 6 yoa with moderate or greater vision or hearing impairment including deaf andblindness, Down syndrome, Cerebral Palsy or Fragile X syndrome
•    $6 000 x 2 = $12 000 >7th birthday or funds expended
•    BSI funding for SP + OT + PT + Therapist-approved resources to assist with the cost of EI services + some ongoing Medicare items
•    July 2009 > FaHCSIA added children diagnosed with Prader Willi, Williams, Angelman, Kabuki, Smith-Magenis, CHARGE, Cornelia de Lange, Cri du Chat syndromes and Microcephaly
•    February 2014 > children diagnosed with Rett’s Disorder moved from HCWA funding to BSI funding
FaHCSIA > DSS
•    In 2014 = FaHCSIA changed to Department of Social Services (DSS)
•    HCWA funding and BSI funding continued as before
•    Life-long conditions
•    How were parents/carers going to maintain these ongoing services for their children?
•    How were children, young people and adults who did not have these diagnoses going to fund these ongoing services?